In the year leading up to the launch for a novel treatment of a rare disease in an area of high unmet need, our client wanted to ensure the treatment was available to those most in need, so we carried out targeted, in-depth patient engagement to gain a better understanding of life with the disease from the patient and carer perspective.
To understand the burden of disease and experience of current treatments
To understand the priorities amongst patients (and carers) in relation to their condition – what are their main challenges, what would they like to change, how they are currently addressing these priorities and what more could be done as individuals and as a community
We held a two-part patient advisory board attended by 11 patients and caregivers. Using engaging materials and workshop techniques, we facilitated a lively and informative discussion, which gave us insight into the challenges of living with the condition, and where the areas of unmet need lie.
ZPB has a good knowledge and understanding of client requirements. They are very easy to deal with, quick to action with a high level of detail. Keep up the good work!
Commercial Director UK & Ireland